Kelly and  Robin - in Rome... Robin's Make-A-Wish  Adelia

Disclaimer
The material included here is a composite of information taken from the history of FAPG and INTERNAF Emails covering medical articles, physician recommendations, and personal experience. This information SHOULD NOT be used as a substitute for seeking professional medical diagnosis, treatment, and care. You SHOULD NOT rely on any information in these pages to replace consultations with qualified health professionals.

Overview
FA brings with it a host of life situations that involve reaching out to medical resources of many kinds and for many needs and conditions. In these pages you will find Western medicine treatment suggestions plus inputs from many other countries, cultures, medical traditions and alternative medical approaches. The authors bring these inputs to you with a minimum of scrutiny or censorship. DO use this information to broaden your scope of possible symptomatic FA treatments.

FARA Clinical Guidelines
Friedreich's Ataxia Research Alliance has gone to considerable lengths to pull together a set of "best practices" for FA medical conditions representing the perspectives of 39 known and respected Western medicine FA clinicians. The authors recommend you start there to get a firm footing on the "typical" approach to FA clinical care that has been strongly vetted before advancing to these minimally vetted supplemental grass-roots suggestions on clinical care.

FARA Clinical Care Guidelines

Organization
We have tried to organize the Medical section for reasonably easy location of topics but there are many topics and several ways many could be inserted. Do know most of what you seek will be here. One suggestion is to use the website Search feature found toward the bottom of the main left menu bar. Feel free to use the "Contact Us" icon on the bottom of every page for questions. Note that this content is evolving and many topics are currently under development.



Emergencies: Hospital and ER


Dentistry

Diagnosis/Special Populations/Siblings-Relatives

Doctors

Ataxia and FA Training

Doctor Visits: How often for what?

Emotional/Mental

FA and Death

FA Organ Donation

FA Death: When and How

Physical Symptoms

Bladder

Bowel

Choking/Dysphagia

Dehydration

Diabetes

Digestion/Reflux

Ears/Hearing

Energy/Fatigue

FA Heart/Striations

Iron Levels

Legs/Feet

Lung Capacity

Pain

Pressure Sores

Reflux

Scoliosis Bracing

Sex Drive

Skin Sensitivity

Sleep

Spasticity and Spasms

Speech

Spinal Surgery

Temperature Sensitivity

Tremors

Vision

Physical Therapy

Pregnancy

Puberty

Routine Periodic Testing

Supplements


Questions? Contact Us Donate to FARA